This weekend has been a lot of fun. It has probably been the best I’ve felt since I saw my consultant. As you’ve probably guessed from the title, a couple of close Uni friends came to stay for the weekend. We graduated from the University of York almost five years ago and since then we’ve spent three weeks travelling around America and enjoyed a festival in Budapest. These two women truly are two of my closest friends and for that I am very grateful.
I had briefly mentioned CRPS to them but had not gone into detail. When they both arrived, we (well more they) made a picnic and we all headed to a park in a town close to mine. The weather was perfect and we sat under a large tree eating our rolls and strawberries. One of my friends had brought down camping chairs, which made it a lot easier for me. I can’t tell you how amazing it was to sit, chat and relax in the fresh air. There is something very healing about sitting outside and appreciating the beauty of nature. I explained CRPS in more detailed to them. They both asked whether this would go away after the surgery and they were surprised when I said no. This question and response is becoming very common and I need to get better at explaining that it’s not curable. I also find it hard to explain to people as I don’t really understand it myself. They were both very supportive. After that, we spoke about all the normal stuff that good friends chat about and we laughed a lot. We spoke about going back to the Budapest festival next year- something I am very much hoping I will be able to do.
Our evening consisted of ordering take away, watching one of our favourite shows and laughing even more. We only watch Scandal when we’re together as we have strict/ slightly weird TV watching rules. I even had a some wine as I haven’t taken any pain killers for over a week. I had a small attack over night. It wasn’t as painful as other attacks I’ve had but I did feel a pretty intense stabbing pain in my foot and shooting pains in my leg.
I think one of the reasons this weekend has been so incredible is CRPS became a small part of my life, not my whole life. It may be a little over dramatic but I feel like my life is all about CRPS at the moment. I’m starting to tell people about it and I’m being more honest about the pain I’m in. But not this weekend- we spoke about it and then we moved on. I trying to accept that CRPS will most likely be a part of my life in some way but that doesn’t mean it ever has to become my whole life.